Thursday, October 29, 2015

Dwarfism Awareness Month | Post 9

There is no "cure" for dwarfism; in fact, it's not a disease that requires one in order to live happily or be successful.

There is an option to undergo limb lengthening procedures that would require years of extensive surgeries. However, "there are no established medical indications for symmetric extended limb lengthening (ELL). While it may have benefit in preventing certain orthopedic and neurological complications in some skeletal dysplasias, the procedure is primarily being performed for adaptive, cosmetic, and psychosocial reasons (from the LPA)."

There is also research being done on a pharmaceutical treatment that has been shown to increase growth velocity in people with achondroplasia, although the long-term affects of such treatments are unknown.

These treatments are controversial in the LP community. And while, it's great to see the medical advancements, this is not a choice that I would ever make for Otto. We will make sure he's informed of his options and allow him to make a decision for himself when he's old enough to do so. Regardless of his decision, Otto will always have our love and support.

going places

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